Since the beginning of this century, advances in science, especially genetics, have contributed to improving the diagnosis, prevention and treatment of diseases.
Knowing the information about the individual’s genome enables knowledge about the risks, the possibilities to prevent the disease, or, if it occurs, to treat it more precisely, with fewer side effects. However, this knowledge poses a very big challenge to society because genetic information somehow becomes a public good. If you decide to participate in research that includes genetic testing, what will happen to your genome data? Who actually owns the right to that information, who can access it and under what conditions.